by Nicci Gerrard - £16.99 Allen Lane (2019)
hardback ISBN 13: 9780241347454 | ISBN 10: 0241347459
'Dementia is all around us, in our families and in our genes; perhaps in our own futures. If it's not you or me, it's someone we love.'
After her own father's death from dementia, the writer and campaigner Nicci Gerrard set out to explore the illness that now touches millions of us, yet which we still struggle to speak about. What does dementia mean, for those who live with it, and those who care for them?
This truthful, humane book is an attempt to understand. It is filled with stories, both moving and optimistic: from those living with dementia to those planning the end of life, from the scientists unlocking the mysteries of the brain to the therapists using art and music to enrich the lives of sufferers, from the campaigners battling for greater compassion in care to the families trying to make sense of this 'incomprehensible de-creation of the self'. It explores memory, language, identity, ageing and the notion of what it truly means to care. And it asks, how do we begin to value those who become old, invisible, forgotten? What do we owe them, and each other as humans? What, in the end, really matters?
(Price & availability last checked: October 2019)